I’ve been diagnosed with dementia. I suddenly couldn’t spell or write legibly.

I even have been diagnosed with brain damage and dementia. Word to the younger folks: I woke up last yr and suddenly couldn’t spell or write legibly. No warning. No symptoms. I get worse, so I need to guard my wife of 24 years, and our funds. She’s going to get half my pension and she or he has a good higher pension than I do.

We have now two long-term care policies — one is paid off and the opposite is 5% inflation-adjusted with plenty of positive riders etc. If I find yourself living an extended time and use up my long-term care policies — currently valued at $600,000 — and must go on Medicaid, will now we have to sell our house to pay Medicaid? 

I don’t want my wife to lose all the pieces. Will an elder-law attorney really help? I even have heard mixed reviews, and that they arrive at an enormous cost. Thanks for reading and a note to your readers from someone who knows: Do your bucket list traveling as soon as you’ll be able to because chances are you’ll not have the time left you’re thinking that you do.

Love & Peace

“You will have financial, legal, medical, social and emotional support. That may involve enlisting the assistance of family members.”


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Dear Love & Peace,

Keep all of your options open, and don’t embark on this journey alone.

You will have financial, legal, medical, social and emotional support. That may involve enlisting the assistance of family members and, yes, counting on a network of skilled support. You will have to reassess your financial goals, debts, savings, insurance, income and expenses. Take it sooner or later, one step at a time. There are government programs that would provide help, and chances are you’ll give you the chance to withdraw money out of your IRA even when you usually are not 59½ without incurring a penalty.

Dementia is a symptom somewhat than a disease itself. In actual fact, there are over 100 diseases that would cause symptoms consistent with dementia. Alzheimer’s disease is essentially the most common form of dementia, in response to the Centers for Disease Control and Prevention. Roughly 5.8 million people within the U.S. have Alzheimer’s disease and related dementias, which incorporates 5.6 million people aged 65 and older and 200,000 under 65, the CDC says. 

There are other forms, including frontotemporal degeneration (FTD), which have received greater public awareness for the reason that FTD diagnoses of former talk-show host Wendy Williams and actor Bruce Willis were made public. That could be a common explanation for dementia, and characterised as a bunch of disorders that occur with the lack of nerve cells within the frontal and temporal lobes. Aphasia, the lack to process words and communicate properly, may be one symptom.

Power of attorney and healthcare directive 

There are several things you’ll be able to do to smooth the trail ahead. Update your will, and create a financial power of attorney. Don’t do a DIY version. As my colleague, MarketWatch reporter Beth Pinkser identified, it’s complicated. You possibly can read “The Power of Attorney’s Notebook.” You could also want to reassess your investment portfolio, based in your latest financial statement and risk tolerance. (I assume you usually are not yet 65, and as such don’t qualify for Medicare.)

A sophisticated healthcare directive informs your doctors what motion you would like them to take if or if you end up unable to make those decisions yourself. You could want to list your wife as your healthcare proxy to perform those decisions. You might be a team, but serious medical issues can put pressure on a wedding, as this couple discovered, so she is going to need emotional support, too. Also, ensure you may have a successor to your wife on each your POA and healthcare directive.

Your wife can have numerous responsibilities: paying utility bills, paying your mortgage, maintaining up to now along with your medical care and funds, and managing her own life at the identical time. Share your story with trusted family and friends and create a team — a community of people that can provide support, the latter of which should include updating your beneficiaries. You could possibly also write instructions for easy accessibility to your devices, documents and even your day by day habits.

Long-term care insurance helps with expenses

You’ve got done one key thing, something that needs to be an influence of example for others reading your letter. You invested early in long-term care (LTC) insurance and have policies price $600,000. (You don’t specify when you took out shared policies.) But having a LTC policy, greater than anything, will help alleviate the financial burden that lies ahead. Nursing-home care costs can vary dramatically depending on the form of care, state and institution (as much as $125,000 a yr).

An elder-law attorney could cost you anywhere from $100 to $600 an hour, depending on the sort of services you wish. An attorney and financial adviser will assist you to take an accounting of your assets, income, expenses and projected long-term care costs, and assist you to plan accordingly. Financial planners often have knowledgeable network that features attorneys and accountants, who can collaborate in your case, and share useful information.

“It’s difficult for many individuals to come to a decision whether and when to place your long-term care policies in payout status, and that may be very comprehensible because the policy has a limited term or money cap and will run out when you put it into effect too early,” says Elizabeth Forspan, an attorney with Forspan Klear LLP. “Nevertheless, when you mix this with a Medicaid plan, then it may well be extremely effective. You must take a look at the precise Medicaid rules in your state and jurisdiction.”

Making a trust to guard your assets

“Perhaps you’ll be able to create a trust and divest yourselves of a few of your assets now with a view to make it through the five-year Medicaid look-back and through that point use your long-term care policy,” she adds. “You won’t give you the chance to find out this on your personal, probably.” An attorney and financial planner can assist you to weigh up the professionals and cons. It could be that you just determine to maintain your house. Selling any useful asset, particularly a house, needs to be a final resort.

There are exceptions to the five-year look-back rule for Medical eligibility: They include paying off debts, buying medical devices or home improvements to enhance accessibility, in response to the American Council on Aging, a Medicaid resource funded by planning firm Eldercare Resource Planning. But your income and other assets may disqualify you from Medicaid eligibility. You possibly can read more on Medicaid rules here. 

Some states, including Florida and Latest York, have rules that exempt homes from assets calculated by Medicaid, under certain circumstances. In Latest York, it’s essential live in the house while receiving care or plan to return to the house after your care. California eliminated their asset limit this yr, making an individual’s home routinely protected from Medicaid while they reside; nonetheless, that doesn’t mean it’s protected from Medicaid’s Estate Recovery Program.

I wish you and your wife the very best of all the pieces on this journey.

You possibly can email The Moneyist with any financial and ethical questions at qfottrell@marketwatch.com, and follow Quentin Fottrell on X, the platform formerly generally known as Twitter. 

The Moneyist regrets he cannot reply to questions individually.

Previous columns by Quentin Fottrell:

‘Things haven’t been easy’: My sister is a hoarder and procrastinator. She is delaying probate of our parents’ estate. What can I do?

‘I gave up a job that I loved passionately’: My husband secretly arrange a trust that features our home and his investments. What should I do?

I even have $1.5 million in stocks and bonds. I asked my broker to convert my bonds to money. He didn’t and my portfolio fell by $100,000. Can I sue?

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